European Haemophilia Consortium

Info

The European Haemophilia Consortium (EHC) is an organisation that gathers the European national haemophilia patient associations (National Member Organisation) from 43 countries in Europe

Geschiedenis

To this end the EHC engages in outreach and communication activities with policy makers, the medical profession, fellow patients and the public at large with a view to provide expertise and knowledge on how to live with the disease. In doing so the EHC in 2006 initiated an EU Advocacy Programme focussing especially on EU stakeholders and building the right platforms to communicate with them. Such platforms include the EHC's new website which was launched on World Haemophilia Day, 17 April 2007, as well as the introduction of EHC Round Table of Stakeholders to discuss topical issues concerning the EHC. (activities)
The EHC is grateful for the support it receives for the above activities from sponsors and other partners.

"The European Haemophilia Consortium EHC is an international non-profit organisation that represents 47 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union EU and most Member States of the Council of Europe.The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease VWD and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder."